The Stigma
I haven't said much about it on the blog because I'm fully aware of the stigma. Before it was my own child, I used to think, "Why can't those parents control their child better than that?" I was judgemental. Now it's me.
I have decided, in an effort to help family and friends understand what's going on, I should include this on my blog. After all, that's why this blog was started almost 6 years ago.
By the age of 5, I was beginning to realize that once again, there was something different. David just didn't seem to function the same as other kids his age. Although extremely smart, he did not do well in a group setting like Sunday school and our home school co-op classes.
We home schooled Kindergarten and again he proved very smart. When I discovered he was left handed, we made some adjustments and fine motor skills improved. We still didn't want to label him, so "off the books" we had my sister-in-law test him for ADHD, although she was skeptical. But we had seen more, and the test showed a high likelihood that he had the disorder.
We changed our diet, avoiding artificial colors, artificial flavors, and certain preservatives. We joined the Feingold Association and learned a lot about all natural & whole foods. I need to re-read all of their information again and make sure I haven't let anything slip back into our diet, too. We tried several homeopathic remedies to help with the ADHD.
In the spring of this year, things started getting worse again. By summer, we finally decided it was time to talk to the pediatrician about it and consider using medication. We did another test which showed an even stronger likelihood of ADHD and ODD. The day we went to the doctor with our test results in hand, I was in tears. It had gotten that bad. It is not just a problem with attention-span and hyperactivity. It's much more complex.
Attention-deficit/hyperactivity disorder, or ADHD, is a developmental disorder of self-control. It consists of problems with attention span, impulse control and activity level. But, as you will discover here, it is much more. These problems are reflected in impairment in a child's will, or capacity, to control his own behavior relative to the passage of time - to keep future goals and consequences in mind. It is not, as other books will tell you, just a matter of being inattentive and overactive. It is not just a temporary state that will be outgrown, a trying but normal phase of childhood. It is not caused by parental failure to discipline or control the child, and is not a sign of some sort of inherent "badness" in the child. ADHD is real - a real disorder, a real problem, and often a real obstacle. It can be heartbreaking and nerve-wracking.
Quote from the book, Taking Charge of ADHD: The Complete, Authoritative Guide for Parents (Revised Edition)by Russell A. Barkley, PhD, also referenced below.
The first week, we started on a low dose of a stimulant medication in the morning and saw an improvement in David's behavior for 6 hours after taking it. The next week, we added a low dose of a non-stimulant medication in the afternoon, which has now been increased twice. He does better most of the day with random episodes of anger and defiance. Sitting through an almost 2-hour church service today was a stretch of his capacity, though. (The same could be said of adults also, but at least we have the ability to control how we act about it!)
I am reading this book to help me understand ADHD and how to handle him because the "normal stuff" just doesn't work with him. Taking Charge of ADHD: The Complete, Authoritative Guide for Parents (Revised Edition)
Here's something I read today that I wanted to share about the nature of ADHD. I'm on the chapter about the possible causes. Remember that I mentioned before that it's not just a problem with attention-span and hyperactivity. A study in Denmark had the following findings:
...ADHD children had less blood flow to the frontal area (of the brain), particularly in the caudate nucleus - an important structure in the pathway between the most frontal portion of the brain and the structures in the middle of the brain known as the limbic system. The caudate nucleus is made up of several bundles of nerve fibers, one region of which is known as the straitum. This region is important in inhibiting behavior and sustaining attention. The limbic system, to which it is connected is responsible for a variety of human activities, chief among which are controlling emotions, motivation, and memory.Other studies have shown lower brain activity in the frontal area of the brain in cases of ADHD across the board - in children, adolescents, and adults.
I hope that by starting to share some of our journey here, more people will be able to understand what it's really like and not just have the judgemental attitude I held for so long.


